Name: Jamie Heywood: La gran idea que mi hermano inspiró
Uploaded: 2010-02-02T09:37:00Z
Duration: 16 min 37 s
Description: When Jamie Heywood's brother was diagnosed with ALS, he devoted his life to fighting the disease as well. The Heywood brothers built an ingenious website where people share and track data on their illnesses -- and they discovered that the collective data had enormous power to comfort, explain and predict.

When Jamie Heywood's brother was diagnosed with ALS, he devoted his life to fighting the disease as well. The Heywood brothers built an ingenious website where people share and track data on their illnesses -- and they discovered that the collective data had enormous power to comfort, explain and predict.

Jamie Heywood: La gran idea que mi hermano inspiró

By transforming personal illness experiences into shared data, patients can uncover patterns, test treatments, and support one another. One family's journey with ALS led to a global platform where 45,000 people collectively track symptoms and outcomes. This network revealed, ahead of formal studies, that some promising drugs offered little benefit, saving precious time and resources. Turning real lives into data points empowers patients to shape medical understanding in real time.